Starlet - Southern Alberta Registry for Lupus Erythematosus
Summary
The goal of this registry is collect information to help us improve the care and treatment of patients living with systemic lupus erythematosus (SLE).
This information will help health researchers to learn more about the short and long term effects of lupus and its treatments on our patient population.
Participants will be asked come for a study visit once a year to complete a medical history and quality of life questionnaire. Each study visit will take approximately 30 minutes at the Richmond Road Rheumatology clinic.
Once in the registry, participants will be notified of opportunities to participate in other research studies.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 18 to 100
Inclusion criteria:
Patients diagnosed by a rheumatologist with systemic lupus erythematosus (SLE) are eligable for this study.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
physician referral only
Principal investigator:
Ann Clarke
Clinical trial:
No
REB-ID:
REB13-0425