Perspectives of Acute Myeloid Leukemia Patients During Initial Diagnosis
Summary
Researchers at the University of Calgary would like to know what people who are recently diagnosed with acute myeloid leukemia (AML) understand about their disease when first diagnosed. When people are diagnosed with AML, they receive a large amount of information upfront. During diagnosis people need to make treatment related decisions quickly. The goal of this study is to understand how people with AML understand their diagnosis and make treatment related decisions. Using this information, we may improve patient education and support strategies
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 18 to 100
Accepts healthy participants: Yes
Inclusion criteria:
Who is eligible:
1. Adults aged 18 or older who have been diagnosed with acute myeloid leukemia (AML) cancer within the last six months and have undergone only one type of treatment for their AML.
2. Must be able to speak and read English and capable of providing informed consent.
3. Must be willing to participate in a one on one interview for approximately 60-90 minutes.
4. Must be able to engage with interview team via telephone or electronic platform, or in person if residing in Calgary.
Exclusion criteria:
Who is NOT eligible:
1. Pregnant women.
2. People who cannot speak English.
3. People who cannot provide informed consent.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
1. Hematologist Referral or 2. Camille Piquette (Study Staff) Camille.piquette@ucalgary.ca 403-220-6198
Principal investigator:
Colleen Cuthbert
Clinical trial:
No
REB-ID:
HREBA.CC-23-0232