Nationwide Idiopathic Subglottic Stenosis Evaluation
Summary
This study intends to determine how common idiopathic subglottic stenosis (iSGS) is across Canada, and to determine reasons why people develop the condition. The disease has increased from rare and newly described in the 1970s to a relatively common diagnosis in the last decade. The study investigators want to determine the incidence (number of new diagnoses per year) and prevalence (number of people living with the disease) in every province. This will help understand if there are certain areas with higher rates of disease and lead to new studies looking at factors causing the increased rate of disesae.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 18 to 100
Inclusion criteria:
All adults (18 years of age or older) previously diagnosed with idiopathic subglottic stenosis are eligible for this study.
Exclusion criteria:
You are not eligible to participate if you 1) Do not have subglottic stenosis. 2) Have subglottic stenosis caused by a known reason, for example autoimmune, prior surgery, prior intubation, congenital. 3) Have narrowing of the trachea below the subglottis. 4) Are less than 18 years of age.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
If you are eligible for this study, please contact the Principal Investigator Dr. Derrick Randall.
Principal investigator:
Derrick Randall
Clinical trial:
No
REB-ID:
REB22-1628