Diagnostic History Study.
Summary
Individuals with autism spectrum disorder (ASD) often experience misdiagnosis, difficulty in obtaining a diagnosis, or may receive multiple diagnoses. Delays in diagnosis have been shown to result in children missing out on early intervention therapies which can later have implications in their cognitive development and social interactions. Further, delays in diagnosis have been shown to create dissatisfaction among families and caregivers of children with ASD, and may contribute further to the stress they experience. This study aims to explore the diagnostic process of children with ASD, investigating caregiver satisfaction with their child's diagnosis, the stability of diagnosis, and delays experienced in the process.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 1 to 100
Accepts healthy participants: Yes
Inclusion criteria:
1) Caregivers of children/youth 18 years of age or younger with a primary diagnosis of ASD
2) Individuals 18 years of age or older with a primary diagnosis of ASD
3) Participants are proficient in English
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
Please contact the research team at diagnostichistory@gmail.com or Dr. Carly McMorris at camcmorr@ucalgary.ca or (403) 220-5457.
Principal investigator:
Carly McMorris
Clinical trial:
No
REB-ID:
REB16-1987