Choosing the Right Model of Care
Summary
We are conducting a study on virtual versus in-person chronic pain management in children and adolescents. The purpose of this study is to co-create a decision aid. The decision aid will be a tool to help children with chronic pain, their families, and their healthcare team decide together whether an in-person or virtual appointment is best. This is called shared decision-making.
To participate, you will be interviewed by a research team member to learn more about your experiences with in-person and virtual care for your pain. The interviews will take place virtually over Zoom and will last about an hour. What we learn from participants in these interviews will help us to create the decision aid. All participants will receive an electronic gift card by email from the study team after their interview.
If you are 12-18 years old with chronic pain, or the parent of a 12-18 year old with chronic pain, we want to hear from you!
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 12 to 18
Inclusion criteria:
Eligible children and adolescents are:
1. 12-18 years old
2. Have pain that has lasted more than 3 months
3. Are comfortable speaking and answering questions in English
4. Live in Canada
5. Are followed by a clinic for their pain
6. Have had virtual care appointments before
7. Have access to a computer, tablet, or smartphone with and an internet connection
Eligible adults are parents or primary caregivers of a child who:
1. Is 12–18 years old
2. Lives with chronic pain (i.e., pain lasting >3 months)
3. Speaks English
4. Lives in Canada
5. Is followed by a clinic for their pain
6. Has experience with virtual care
Exclusion criteria:
Participants are not eligible who have:
1. Significant cognitive impairment.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
If you are interested in participating or learning more, please contact the research team at:
Principal investigator:
Kathryn Birnie
Clinical trial:
No
REB-ID:
REB22-0861