Canadian Inflammatory Myopathy Study Group (CIMS)
Summary
Myositis describes are a group of rare diseases that are characterized by muscle inflammation and weakness. Given the rareness of these diseases, our knowledge of how they develop, who they affect and how to optimally investigate and treat patients with myositis is still lacking. The purpose of this study is to recruit and collect data on patients with myositis to include in a Canada wide database. By collecting this information we hope to further our knowledge and improve the care of patients with myositis.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 18 to 199
Inclusion criteria:
Inclusion criteria
1. Age >18
2. Diagnosed with an inflammatory myopathy/myositis within the past 3 years.
Exclusion criteria:
Exclusion Criteria
1. Not fluent in English of French
2. Unable to provide informed consent due to an underlying condition
Participate
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Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
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Additional information
Contact information
Hospital Admission or Physician Referral Only
Principal investigator:
May Choi
Clinical trial:
No
REB-ID:
REB23-0521