Adolescent and Young Adult Cancer Priority Setting Partnership
Summary
Most cancer research has not considered the priorities of patients, caregivers, and clinicians, which often differ from the priorities of researchers. The goal of this project is to create a list of research priorities for AYA cancer in Canada based on what patients, caregivers, and clinicians would like to see researched. The priorities will be shared with funders so that future research addresses what matters most to AYAs, their caregivers, and clinicians. This is the time for you to be heard and influence important research that will have an impact on the lives of those affected by AYA cancer now and in the future.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 15 to 80
Accepts healthy participants: Yes
Inclusion criteria:
In this survey we would like to hear from the following people in Canada:
• People who received a diagnosis of cancer as an AYA (i.e., between 15-39 years of age)*
• Caregivers of people diagnosed with cancer as an AYA (e.g., family, friends)
• Bereaved caregivers of people diagnosed with cancer as an AYA
• Clinicians who provide direct care to people diagnosed with cancer as AYAs (e.g., physicians, nurses, psychosocial clinicians, rehabilitation clinicians, others)
*Note: Individuals who were diagnosed with cancer as an AYA and are now older than 39 years of age are welcome to participate.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
A description of this study will be available on www.AYACancerPSP.ca. You can search for this website at any time.
Principal investigator:
Fiona Schulte
Clinical trial:
No
REB-ID:
HREBA.CC-23-0156