The Elephant in the Room: Talking to Children with ASD about their Diagnosis
Many families struggle with decisions pertaining to when, how, and if their child or adolescent with ASD should be informed about their diagnosis. ASERT is conducting a study to explore the important topic with the goal of developing strategies for supporting parents and professionals who are thinking about talking to a child with ASD about their diagnosis.
We are looking for parents of children, adolescents, or adults with ASD to complete an online survey that will provide us with information regarding if, when, how, and why parents choose to or not to formally talk to their child about the ASD diagnosis. If you are interested in participating in this project, the survey can be found here.
In addition, we are looking for professionals who work with children, adolescents, or adults with ASD to obtain information on their perspectives regarding talking to indiviudals with ASD about their diagnosis. Professionals who are interested in participating in this project can access the survey by clicking here.
Finally, we are interested in hearing from individuals with ASD about their experiences with being informed of their diagnosis. If you are an individual with ASD who is over the age of 18 and you would like to complete a survey designed for you, please email us at firstname.lastname@example.org and we will provide you with the link to the survey. If you are under the age of 18, please have a parent email us and we will provide the link to the survey to them for you to complete.
We thank you in advance for your willingness to help us with this important research!